Great, Great Day

Today, my husband and I watched our two little people play with two other special little people - Erin's boys.  All four young men giggled, ran, were rambunctious and crazy.... all good things.  I truly could not have asked for a better way to spend a Sunday.  We took the boys to a local pizza place and hung out for a while.  The boys were loud and busy, which fit the raucous of the rowdy Sunday afternoon football crowd just fine.  They played in the arcade, discussed and debated the spiciness of the pepperoni, and had a ball winning candy from the claw machine.  I'm so glad we had that time together. 

On the way to the pizza place, I had the two littler boys in my car.  They were laughing and chatting the entire way.  My five year old son, Quentin, started talking about a movie he watched.  Quentin is a hard one to interrupt.... I swear he can get on a roll just like his father.  (Love you Jimmy!!)  In any case, Landon, Erin's five year old son, kept trying to interrupt and say something.  Quentin repeatedly said things like, "I'm still talking.  You're interrupting."  It was actually pretty funny to hear.  Then, all of a sudden, Landon half shouted, "Hey don't be a spoiler.  You are going to spoil that movie for me."  The boys talked about that for a while and then Landon said, "Yeah, I used to be a spoiler, but now I know not to do that because people want to see a movie for themselves."  I loved their little banter and their innocent logic. 

As we were walking in, those two were talking about some youtube video they saw.  Supposedly, a guy gets some dogs to work out in the short piece.  My guy said, "The dogs used to be fat, but they worked out a lot.  Now they are unfat."  Landon didn't miss a beat and said, "I know, I saw that!  They are unfat."  LOVE IT!!!!

After some play time and a small dance party, the boys and I ventured to Erin's home.  All four boys had a fun time playing Star Wars in the yard, complete with masks and light sabers.  Erin, David, Claire, and I got to sip some wine and just chat.  It was truly glorious.  I loved their silly side and their serious side. 

Erin is handling this round of chemo so much better.  She said she has discovered that the trick to battling the nausea is to keep a small amount of food in her stomach at all times.  I'm telling ya, it totally sounds like pregnancy!  In any case, she has been eating, she did some housework, let herself take a nap, and was happily watching t.v. and chatting with her dad (David) when I got there.  I am so glad she has such amazingly supportive parents.  Those two have walked through hell and back for their gal, and will not be throwing in the towel any time soon.  On top of that, I love that they enjoy a good visit, a few profanities, and a yummy glass of wine..... or two!!!  Thanks, Suzanne, from World Market.  We enjoyed your vino suggestion immensely!!!  That World Market family is pretty darned amazing at helping look after all of us. Thanks!!! 

Bees, Fund Raisers, and Erin

Erin has always loved bumblebees.  Lately, she has really been captivated by them.  She purchased a pair of bumblebee earrings at the cancer store a few days prior to her first chemo treatment and often finds ways to throw a bee or two into her home decor.  Erin has talked about wanting a bumblebee tattoo when this whole nightmare is over and somehow has grown to love the furry pollen jumpers.  Well, her friend, Roz, has come up with the following t-shirt design.  The shirts will be black cotton and will cost $20.  Every cent of the profits will go to Erin's benefit fund.... which has been a touch stagnant lately.  We will be working out the specifics of ordering, but please be contemplating a t-shirt for yourself and your loved ones.

Here's the logo:

Also, be watching for more updates about fundraisers for our little miss.  There are some plans in the works for a flea market/craft sale and a possible night at a local restaurant with a portion of the proceeds going to Erin.  Totally cool.  There are a few other ideas on the table.  I will share these thoughts when they come to fruition.  Thanks!!!

If you would like to make a flat donation to Erin's fund, please visit any Spokane Teachers Credit Union.  Donations can be made to the "Erin Broughton Hughes Benefit Fund."  Her meal calendar is looking a little empty, too.  Please consider signing up for a meal for Erin and her family:
 Erin's Meal Calendar 

So, Erin.  How is she?  I haven't seen her in a couple of days, but it seems like this round of chemo is going much better.  Yesterday, she took her kids to school and then ran some errands.  I shared with her that my little one was ill and she was offering to pick up some things at the store for me.  Really?????  My munchkin will be just fine.  Erin does not need to trouble with getting popsicles or gatorade for us.  It really touched me as just another example of her ever generous spirit.   I texted her that the Greek dinner is this weekend at a local Greek Orthodox church.  The food is amazing and the dancing and family time is so, so fun.  Erin and I have taken our families there several times before.  Well, her text response to me was, "We should go.  No farting, though."  Oh my, that is a story for another time, but so hysterical that she thought of it.  And, for the record, I am not saying who was doing the farting, just that at one point, one of us might have had some trouble with the Greek food settling in a pregnant belly.  Ha!!!  In any case, I love seeing shades of normalcy and Erin's drive to reclaim her life.  Erin will beat this monster because of her tenacity, her spunk, her humor, and her amazing fan club.

Random..... my little man has been struggling with some wicked air quality issues in our neck of the woods, that is reeking havoc on his asthma.  I texted Erin the other day and told her he coughed to the point of throwing up.  Gross.  Well, when she and I were visiting that evening, her youngest walked in the room and announced, "Well, I heard Quentin has the vomit."  It was so hysterical.  We both doubled over giggling.  "The vomit????"  It isn't like he has the clap or anything, but man did Erin's little man get us chuckling.

Well, I will post more about t-shirt orders as we get a plan in place.  I also will post more about fundraiser details as soon as I get them.  Thank you for considering a donation to Erin's Benefit Fund and signing up for a meal through her calendar.  Her family, friends, and I have been greatly blessed by the kindness of others.
Thanks,
Kim

Generosity

Tonight, I delivered a meal from Erin's World Market coworker, Linda, and a basket from her World Market friends.  I really am the lucky one to get to show up with the goods that someone else has slaved over and delight in the joy from Erin and her family.  After I was given the goods, I picked up Erin's oldest and my oldest after taekwondo, and headed off to her home.  My guy and Gavin giggled hysterically in the back of my car.  They laughed about video games, youtube videos, school stories, the kid who farted in class, everything.  It was honestly a happy moment for my soul.  There is truly something pure and healing in the laughter of children.

My younger boy recently found some candy cigarettes at a store that we bought and tucked away in the car.  I had bought them for him with the caveat that he never ever smoke a real one.  He agreed..... I won't forget that!  So, Morgan (my oldest) and Gavin (Erin's oldest) created a plan to freak out Claire (Gavin's grandma) by walking in his house with these candy cigarettes hanging out of their preteen lips.  It was honestly hysterical, especially because they were biting and chewing the ends like candy and definitely not like genuine cigarettes.  Erin was on the couch when the boys came in and played along with shock and disgust at our boys indulging in a good "smoke."  It was a very fun, goofy, real life moment.

Erin, Claire, and I enjoyed a bit of a visit while the little men played.  Erin shared the many amazing gifts she has received - scarves, hats, cards, wine, and we peeked through the beautiful basket sent by her friends at World Market.  It was so fun to look at all of it.  The outpouring of love and support is humbling and gratifying all at the same time.  Erin was in a great mood.  She talked, laughed, teased me about more things than I care to remember, and was just her beautiful self.  I loved every minute of it.  Honestly, I could have stayed and chatted with her and Claire all night, if I thought they both were up to it.....and if I didn't have to work tomorrow.  It was almost like old times.... just some baldness, some hats, a pink ribbon or two, and some meds thrown in.  Otherwise.... exactly like old times.

While we were talking, Claire and I hit a serious topic.  I can't remember the exact nature (I have my suspicions... um.... cancer....) and the boys ran through the room.  Claire and I continued down our deep conversational path and Erin started giggling in a way that almost seemed inappropriate to us.  Turns out, the big boys were chasing Landon through the room while he was carrying a sword and donning an impressive pig shnozz on his face.  It was so fun to watch Erin's face light up with joy and hear her giggles fill the room.  Landon was truly a sight to be seen.  I followed the boys outside with my phone and begged for the following shot.....  My son is apparently retired from modeling.... as he ran off when I mentioned a photo......

Those boys crack me up.  So, so funny.  I love them dearly and am so glad they constantly bring a smile to their Mama's face.  A pig snout and a sword, with bunny ears, is pure humor.  I love it.

Thank you to everyone.  Erin has felt your love and support.  She and her family have appreciated your generosity and thoughts.  This road isn't over, it definitely isn't smooth, but it is survivable because of the love and support of friends and family.  Thank you.

Chemo Round Two

Erin fought her way through her second round of chemo today.  Her dad was with her to help pass the time and hold her hand.  She had some strategies in mind to fight the restless legs, which seemed to help.  She spoke with the dietitian and has some great ideas to help with the yucky feelings that might be on the way. 

My boys and I brought her a meal tonight, from her meal calendar (Thank you, Somer!!!) and got to hang out and visit for awhile.  The boys giggled like crazy with her two little ones.  I'm not sure what exactly they were up to, but all four laughed so hard it was impossible not to get carried away in their tide of excitement.  The adults sat outside and visited.  As usual, Erin was more worried about me than about herself.  She wanted to know all about my war wounds and how I am doing from my recent stumble.  Seriously????  She had a round of chemo today!  I just caught the sidewalk with my shoulder.  But, that is what is so amazingly special about Erin. 

I asked her about today and what she would want on the blog.  She said that today was uneventful.  She did chemo and seemed to be doing ok tonight.  The most hysterical comment came when she was sharing about her Dad.  Her Dad's girlfriend, Trish, writes the River Journal - a local magazine in Sandpoint.  David (Erin's dad) is beyond proud of this magazine.  When we hung out at Erin's very first surgery in mid-August, he gave me a copy and urged me to read it.  I would have, but when the surgeon came out, David began chatting about the River Journal and stole mine back to give to Erin's surgeon.  It was actually a pretty comical interaction with him elbowing me and urging me to dig my Journal out of my purse.  In any case, Erin said she was watching another patient in the chemo room reading a magazine.  He was across the room from her and seemed to be engrossed in his reading.  Slowly, he began to slump down and more of the magazine was visible.  Erin stopped, stared, and said, "Dad, is that a River Journal he is reading???"  Yep, David shared his pride in the chemo room, too.  LOVE IT.  Trish, you are so very lucky.  David is extremely proud of you and is going to make sure the whole world knows it.  David, I still need my copy and am hoping Trish writes an article about the key to a good Greyhound is Ocean Spray white cranberry juice. 

Erin is hoping to do well this week.  Last time, two days after chemo was exceptionally rough.  I am hoping and praying that she feels better than last time.  Please continue to keep our sweet gal in your thoughts and prayers.  She is so beautiful, so positive, so hysterical.  Love you, Erin!!!

Long time, no post....

So sorry about the blog inactivity.  That is blatant blog abuse!  I didn't see Erin at all this week.  LAME.  School keeps this first grade teacher busy and Erin's (bigger) little man was sick.  Yuck.  In any case, I finally got to see her tonight.  Erin is absolutely beautiful.  She is the most gorgeous bald woman imaginable.   The hats she has received are so classy and compliment her natural charm.  She is amazing.  We got to chat about all kinds of things - cancer (of course), my lack of grace lately - that really was an awful spill I took, her kids, my kids, everything.  I love Erin dearly and am so glad I got a chance to chat with her.  Her attitude and outlook are incredibly positive and inspiring.  I honestly have no idea how she does it.  I struggle with looking at things in a positive outlook and I am not trying to free the cancer excalibur like she is.  Erin is completely a "glass is half full" kind of gal.  I really did take an awful fall yesterday.  I'm kind of bruised and scraped.  I was filled with the "poor me" attitude, but Erin reminded me how things could have been so much worse.  I have scrapes and stuff, but no real damage.  I need to remember that the things that seem so truly hideous in my life are really just minor bumps along the way.

Erin is scheduled to have round two of chemo tomorrow.  She is hoping things go well, but is understandably anxious about the course this round will take.  I know she has the strength to fight it and just wish I could fight some of it for her.  Chemo really is a poison.  It is designed to kill the cancer cells, but the rest of her body has to fight back, too.  Please keep our sweet Erin in your thoughts and prayers for the next week or so.  The side effects will dominate her life for a while.  I will let you know if I hear of any great things she could use to fight it.

Cards of support can be sent to 3118 W Grace, Spokane WA 99205.
Donations can be made at any Spokane Teachers Credit Union to the "Erin Broughton Hughes Benefit Fund."
There is a link at the bottom of this page to Erin's meal calendar.  Please consider signing up.

Another Surgery DONE!!!

Erin had her port surgically put in this morning.  She is doing well and said it went ok.  Thank you so much for your thoughts and prayers that have been sent her way.  So proud of you, Miss Erin!!!

There's No Place Like Home!!!

Erin came home from the hospital yesterday!  She spent her first night at home with her sweet family since September 4th.  Erin joined her parents in doing something that we probably all take for granted, but assuredly meant so much to this sweet mama.  She dropped her kids off at school this morning.  This is the first morning that she has been outside of the hospital since the very first day of school.  I am so excited for her and am guessing there might have been a tear or two in her eyes as she waved good-bye to her cute boys.

Erin did hear from Cancer Care Northwest.  Her doctor wanted her to go through with her herceptin treatment today.  Her port has not been put in yet, so Erin took her herceptin through an IV.  I haven't heard from her, but I am hoping this went ok and was less painful than the IV she had in the hospital.  Her poor veins have been working overtime.

Just as a reminder, there is a link at the bottom of this page to Erin's meal calendar.  She is home now, and has family helping care for her.  If you would like to bring a meal, please sign up.  Dairy is harder for her, so please go light on dairy ingredients.  A little bit here or there is perfect.  Her mom is staying with her until this whole evil adventure is over.  Claire generally eats fairly healthy foods and cannot eat any dairy at all.

Also, keep in mind her benefit fund.  Donations can be made at any Spokane Teachers Credit Union to the "Erin Broughton Hughes Benefit Fund."  Thanks for your consideration.

Erin, we love you.  We're all here holding you up when this seems like too much.  You are totally going to kick some cancer buns.  EVERYONE is so incredibly proud of you and your amazing tenacity.  Keep fighting like a girl!!!  Cancer should have known better than to mess with you.  Love you, Lady!

A Life Detour

A smile, a twinkle in her eye, a giggle....  Erin had all of these today, even a few teases sent my way about being an unintentional Nurse Ratchet.  I love seeing that.  She chatted with her mother, Jennifer, and I and shared some great stories.  Stories from her bachelorette party..... that her mom hadn't heard before.  Stories about our kids' inquiries into the birds and the bees business.  Stories about so many wonderful memories we've shared.  Honestly, for a while, it felt like we were sitting in a bar, reminiscing about the good old days.  Possibly, it was helpful for a couple of us that there was a smidge of rum in my purse.... or maybe not.  I am so looking forward to the day when we really can share a cocktail, a dinner out, and a real hug that isn't limited by Erin's surgical wounds.  That day will come.  And when it does, there will be huge smiles on all of our faces and a joyous song or two in our hearts.

Erin was so much better than yesterday.  Her I.V. was enjoying a much needed break, giving her veins a chance to rejuvenate.  She ate well and seriously looked beautiful in her soft, new hat.  She even went for a walk with one of the nurses!!!  WOW!  Currently, the expectation is that she will go home tomorrow.  I'm sure the thought of her own bed, surrounded by her family, especially her two precious boys, and no more nurses poking and prodding her has got to be encouraging to our dear friend.  Erin is also scheduled for surgery on Monday to replace her chemo port.  We're still unclear where the port will be located physically, but hope it will help alleviate the demand that has been placed on her I.V. site.

I am awestruck by the battles Erin has won thus far.  Sadly, this heinous war is far from over, but our little gal is strong, tenacious, stubborn, and determined.  Please continue to lift her in your thoughts and prayers.  She can do this.  She is fighting like hell, but it is a difficult journey.  Her mom shared with me that a couple of her friends recently went to a small town in Brazil.  There is an organization there called "John of God."  They do many things to help people spiritually heal and Claire's friends added Erin's name to the prayer list.  To me, it is absolutely incredible how many people are pulling for her, from all over the world.  This blog averages 200+ hits per day.  Wow.  I believe each hit is a prayer, a thought, some love...  Erin, we love you.  This cancer beast is not half as determined as you are.  Someday, we will be getting that tattoo of your cancer-free date.  Someday, we will be publishing this blog, dousing it in gasoline, and burning the hell out of it.  Or maybe we could tack it up somewhere and shoot it full of holes.  Perhaps I'll make multiple copies and we will destroy it multiple times.  I have some black powder and know how to use it.  Someday, this detour in your life travels will be a distant memory that will remind you of how strong you are and how you reclaimed your life.  You fight like a girl, Sister.  You can do this and we are all loving you the whole way. 

A Fighter

I am often overwhelmed by Erin's strength, courage, and fight to conquer all of this.  It was apparent that today was a harder day for her, but she never complained, she never gave up, she just kept fighting like hell.  Our gal is the epitome of a prize fighter.  I am so proud of her.  As for details about today, she returned to her hospital room around 11:00.  She has been working through pain and soreness from the pacemaker surgery and at her IV site.  Erin's poor veins shout back angrily with each new med administered through her IV.  At this point, her left arm is no longer an acceptable option for it, so they are trying to tread gently with her right arm.  The nurses wrap it in warm compresses, which seems to alleviate a portion of the pain.  Erin's team plans on giving her a new chemo port tomorrow, which will be used in place of the IV as soon as possible. Getting her new port will be another surgical procedure for our lady.  I'm not clear on where they will put the port, but will share when I know more.  The nurses are helping her stay on top of her pain management.  Hopefully she will sleep well this evening.  Please continue to keep her in your thoughts and prayers

On the positive side, Erin ate her lunch really well.  Our dear friend, Jennifer, and I sat with her, told stories, held her hand when the IV torture began, kept her company, and squeezed a few smiles out of her.  Erin is such a strong, courageous woman.  Jennifer and I shared with her that we didn't like a face she made - her eyebrows would wrinkle and the furrow between her brows would deepen.  We interpreted that as a pain face.  In reality, it is her concentration face.  She said she was concentrating on fighting this, pushing the pain  away, and healing.  She is absolutely incredible.

When I visited with Erin last night, a family friend had taken her boys to the fair.  Erin's phone buzzed often with pictures and videos of her happy kiddos.  The joy radiated from her with each new image of her sweet children.  We both were so elated to chronicle their evening vicariously.  I'm sharing some pictures from their night away from cancer, away from pacemakers, away from pain. 

Out of Surgery

Erin made it through surgery with flying colors!!!  The surgeons were all smiles. Her X-rays looked good and she is resting in recovery. More updates to follow.

The Man of the House

I visited with Erin for a bit tonight.  Her new buzz is absolutely stunning.  GI Jane has nothing on our Erin!!!  I was delighted to see her eating and moving without noticeable pain.  Her mood was definitely upbeat and unbelievably positive.  I savored every moment of our time to talk, laugh, share old stories, chat about her kids, my kids, how positively inedible hospital food is, the list goes on.  All good.

Erin's surgery for her permanent pacemaker is scheduled for first thing tomorrow morning.  She has met with the surgical team and feels comfortable with them at the helm of her procedure and care.  I am anticipating being at the hospital as much as I can and will try to post updates.  Please keep our incredible Erin in your thoughts and prayers.

Above all else, Erin is an amazing mother.  She shared with me that she didn't quite shave her head completely bald because she wanted the boys to adjust to it in stages.  So wise.  She also beamed with mama pride when she talked about her oldest son, Gavin.  Gavin is 11 years old and a very tender boy.  This summer, Gavin often slept late and was near impossible to rouse earlier.  His mom has shared with me that he has always been the type of guy who could snooze the day away.  Well, he is turning into the man of the house while his mom is away.  He sets his alarm each night, gets up early, takes a shower, runs the water for his 5 year old brother's bath, helps him in, and then gets his brother's attire set out for the day.  The most touching part was that when Erin told Gavin how proud she was of him for being responsible for his little brother, he acted as if it was no big deal at all.  His humility and genuine caring for others definitely sounds like someone else we know!!  Gavin, we are all so proud of you!!!!

Thank you for the kind messages, e-mails, and cards that have been sent to me.  You are all so very welcome for this blog.  I would do anything for Erin.  This is truly the easy part.  So, thank you for thinking of me.  Although I truly wish there was never really a need for this blog, I am encouraged by the depth of caring and compassion from our friends and acquaintances.  Thank you.
Kim

For All of Us

Day 8 in Hospital Captivity

It finally happened.  Erin shaved her head today!  I am so excited for her!  My desire for her is that this event felt liberating and healing.  IT IS JUST HAIR!!!  I hope she realizes that she is beautiful no matter what.  Secretly, I have always been so jealous of the natural beauty that flows through every pore of that girl's skin.  She is positively stunning.

Hopefully, my head will be the next to be shaved.  I can't hold a candle to Erin's glow and grace, ever, but I don't care a lick about that.  Doesn't everyone deserve a partner in crime?  Wouldn't we all want a friend to commiserate with, especially about the idiotic things strangers say in the grocery store??  And, since I thankfully am healthy, and cannot commiserate on any of the rest of her journey, I am ready to bring on the clippers.  Who we are should outweigh what we look like, everyday of the week.  I'd love to set that example for my own children and my students.  I would love to teach them that the value we see in others should be based on actions, attitudes, compassion, and not appearance.  Although..... maybe it will just turn into, "That Mrs. Leighty, she's so crazy.  I think she lost a bet."  Who knows.

As for the details of the day, Erin did have her herceptin treatment at the hospital.  I hope she tolerated that well.  I've heard from her family that she is in a good mood and has shared that her daily cuisine is a bit repetitive.  I bet!  Two very special visitors made their way to Erin's room.  She visited with her Aunt Sue and Aunt Diana.  I'm sure she cherished every second with them and was glad her family got to see them, too.  Last night, Erin chatted with her oldest son, Gavin, over "facetime" on her phone.  Technology is such a blessing at times like these.  Erin and Gavin have always had a very special bond and I am sure they both are missing their typical daily routines, the hugs and kisses we all take for granted, maybe even the nags to get homework done or to turn off the tv, just the normal events in life.  Above all things, Erin takes the most pride in her role as a mom.  I'm sure she is glad to be connected with her two awesome little men. 

Many people have asked me about some possible gift ideas.  Erin will be in need of hats and scarves, but I heard of another really great idea, too.  She is currently enjoying listening to audio books.  Sometimes watching a movie or reading can bring on a bout of nausea, so audio books fit the bill perfectly.  Erin can close her eyes, relax, and listen to the tale woven by her favorite authors.  So, for those of you who are contemplating a gift idea, an iTunes card would be much appreciated.  Erin's home is also near a Safeway grocery store, a Walmart, McDonalds, Subway, and a Baskin Robbins.  Also, please remember that donations can be made at Spokane Teachers Credit Union to the Erin Broughton Hughes Benefit Fund.

Thank you!!!!!!!

An Update and My Rambling Thoughts

Room Change:  Erin is now in room 606 at Sacred Heart Hospital in Spokane.
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Erin visited with her two sweet boys tonight, laughing and joking while filling them with sweet mama lovin'.  It was a nice end to a bumpy day.  Erin's chemo port, that was implanted surgically in August, was removed under a local anesthetic.  General anesthesia is very dangerous for her heart and was not the best option for this surgery.  Her dad joked with me that at least he is in the right place if he needs an x-ray on the hand she was squeezing during the surgery.  The port was removed to make room for a permanent pacemaker.  That will be a surgical procedure in the next couple of days.  Erin will possibly get a chemo port in a different location down the road.

Currently, there has been no known explanation or confirmed cause of Erin's events that prompted the ambulance call.  Originally, the team thought it was an infection, which could still be the case, but no cultures have indicated a specific infection.  Erin and her family are under the care of an infectious disease specialist, who has been added to her team.

Tomorrow, Erin will have a herceptin treatment through her IV.  Her first herceptin treatment was given to her when she initially went in for round one of chemo.  She was due for a second herceptin treatment last week, but was unable to have it due to her other medical priorities.  The doctors said it will be an easy treatment as it will be given through her current IV port.  Hopefully, this will have little side effects for our gal.

Humility.....  we all need a good dose of it now and again....or at least I do.  Everyday, or almost everyday, I send Erin a picture of a refrigerator magnet message.  Today, I messaged her "wearing your dress."  Erin is one of the most giving people I know.  I always know when she cleans out her closet as I will come home to a bag of her nicest give-away clothes on the porch, sometimes more than one.  One time, the most quintessential teacher dress arrived to my closet via one of those porch bags.  Today, I needed a piece of Erin with me and proudly donned the dress.  I snapped a picture of it on my way out the door and sent it to her.  I made some self deprecating remark to her about it hugging some unwanted curves and was completely humbled by her response.  Her response said, "Never complain about a healthy body."  Truly, words to live by.  Who cares if my belly is a little more plump than I want or my thighs are less than svelte?  I am healthy.  My cells are cancer free.  My heart is healthy enough to keep me working and exercising often.  I will think of her comment when I start to pick myself apart or when I make excuses not to work out.  We all have a lot to be grateful for and a few extra pounds, some cellulite here or there, a little speckly skin, or whatever, are all small potatoes.  Thanks Erin!!!  I needed that reminder.  And, in your honor, I went jogging tonight and reminded myself how very lucky I am that I can lace up my shoes and venture out, even if my hip burns slightly and my inhaler got a workout, too.  Now, I just might be sipping a little red wine and thanking God that I am able to enjoy these simple things.  Thank you for blessing me with your gift of perspective.

Caring....  My son was sick over the weekend with some extremely exciting stomach stuff.  True to form, Erin texted me this morning wondering how he was doing.  Really?  It is just the stomach flu!  He will be absolutely fine!!!  No, it isn't fun.  No, I wouldn't wish it on anyone I love.  BUT, he is fine.  He bounced back quickly and will be heading off to school tomorrow.  True to her nature, though, Erin was in her hospital bed worrying about my child.  I just love her.  She is one of the most selfless people I know.  I am so lucky to call her my friend.  Erin, we all love you and are cheering you on.  When you hold a seashell up to your ear, that isn't the ocean, that is your fan club.  Love you, Girl!!!  Go kick some cancer ass.

Room Change

If you are considering sending a card, please note the room change.  Erin is now in room 604.  Thank you!!

More Info and Some Requests

Erin had a fantastic Friday night and really good Saturday morning.  She visited with her family and even challenged her mom to a game of cribbage.  During that time, she told her mom that her heart was "feeling strange."  The doctors came right away and did an EKG.  Based on the results of that, the cardiologist ordered a heart catheter (a camera that goes in a large vein in her upper leg and follows the vein to her heart.)  Her cardiologist felt that the EKG showed a possible blocked passage in her heart and ordered the catheter to get a closer look.  The results showed that Erin did not have any blocked passages.  Earlier in the day, Erin's blood draw showed her potassium level was low.  They gave her potassium through her IV and are wondering if that could have caused the heart issues she experienced.

Around 4:AM today, Erin experienced a similar issue with her heart feeling funny and breaking out in a sweat.  The team brought the crash cart to her room and placed the paddles on her.  I'm not sure exactly what that looks like, but Claire said they are still on her.  I'm assuming they are adhesive types of paddles and not what everybody pictures from the emergency room scenes on medical shows.  As of yet, the paddles for the defibrillator have not had to be used, but have not been removed either.  It appears as though they are there as a precaution at this point.

Her potassium was again low and her team is now using a combination of potassium and magnesium in her IV.  That seems to be a better fit for her and is being monitored extremely closely.  She is having trouble sleeping and is feeling overwhelmed by this situation.

Cards to cheer her up can be sent to:

Erin Hughes
Sacred Heart Hospital
101 W 8th Ave
Room 604
Spokane WA 99204

There also is a really cool feature where friends and family can order cards for free via Sacred Heart's website.  They will print the card and deliver it to her room.  If you would like to try it out visit: Cheer-cards  Also, I asked Claire about flowers.  Erin is highly sensitive to smells right now, a common side-effect of chemo.  Please consider scent free alternatives if sending her your love.  Additionally, perfumes and scented lotions can bring on horrendous nausea for Erin.  If you do visit, make sure you are as scent free as possible.  Thanks!!

Personally, I have been very disappointed that I cannot go visit Erin.  My oldest son came down with the stomach flu, which would be extremely dangerous for Erin, given her compromised immune system.  If you are contemplating visiting her, please only go if you and your household are healthy.  Also, if you work around environments where germs are a concern (like this teacher!!) change your clothes in between work and visits.  I stuck a change of clothes in the car on Friday and changed before I got there.  It seems extreme, but we really have to be vigilant about not causing any undo germ exposure to our little Miss.

Just as a reminder, there is a fund for her at Spokane Teachers Credit Union.  It is entitled the "Erin Broughton Hughes Benefit Fund."  Donations can be made at any STCU branch.  Thank you!!!

The Fair!!!!

Finally, Erin is well enough to reclaim her usual spunky, funny demeanor.  Today, her team transferred her from ICU to the cardiac floor at Sacred Heart.  They removed both her external pacemaker and her temporary chemo port.  She told me they removed those because they want the fewest possible lines for infection in her body.  She did keep her chemo port that was placed in her body surgically a while back.  Surgery to put in a permanent, internal pacemaker is still on the table, being discussed by her doctors.

Our dear Erin has a low grade fever that they are watching, but generally is doing so much better.  She looks a whole lot less puffy and was in an incredible mood, especially given her current luxury suite at Chateau Sacred Heart.  She has been getting out of bed and moving around a little at a time.  Erin was really looking forward to the shower her nurse promised her this evening.  Apparently, she smells foul (according to Erin, of course), I don't know what she is talking about, but I know she will feel a tad more human after a good shower.

Small movements do wear her out as she has spent the last four days on hospital bed rest, the week and a half before that a bit more sedentary than usual given the effects of the chemo, and considering the battle her body is going through with this current situation.  More cultures were taken today, but thus far the team cannot determine exactly what caused the seizure, etc.  And, she has noticed that some of her hair is beginning to fall out.  I really think she needs a bald friend on this journey, but am afraid I am out of luck.  Truthfully, I know that she is secretly worried that if I shave my head to match her, I will finally (for the first time EVER) be slightly hotter than her.  Well, she shouldn't worry.  I might get close, but her beauty is unsurpassed.

So.... the fair.  Why "the fair" as my title???  Well, Spokane has a great fair at the beginning of September each year.  Erin enjoys going with her boys and looks forward to it.  As it got darker tonight, she turned to look at the city lights outside her room, a beautiful perspective on our city.  All of a sudden, she gasped a little and said, "Oh my gosh, the fair!"  I turned all the lights out in her room and gazed at the bright lights of the carnival rides.  It brought a huge smile to her face and captivated her attention way more than the game show we were watching.  When I asked her what she wanted me to write about tonight, she replied happily, "The fair......"  So, now when you picture our sweet Erin, don't picture the tubes, the puffiness, the tiny little bit she could open her puffy eyes, rather, picture the smile you love, the twinkling eyes, her positive spirit, as she watches the ferris wheel lights turn colors at the fair.  It really was an incredible moment that I will treasure.

On a different note, the last few days have been absolutely scary.  A side of hell that no one should explore.  Erin's family and friends have been so amazing in supporting her.  The other day, her dad had spent many, many hours at the hospital.  Poor David was fighting his mammoth state of exhaustion, but having a hard time succeeding.  I snapped this picture of him shortly after he caved to his weariness.  It is so obvious that Erin's loved ones would walk through fire for her.  Thank you to all of you!

Tough Little Erin

I was able to visit with Erin today.  She is currently in the Cardiac Intensive Care Unit at Sacred Heart Hospital in Spokane.  Last night, her team fitted her with an external pacemaker, which has greatly improved her heart to a more steady rhythm.  Erin said she could feel a difference between yesterday and today with regard to her steady beat.  It is unclear what exactly caused Erin's seizure, but the team is continuing to investigate.  Currently, her cultures have all been negative and a clear answer has not been achieved thus far.

Due to her heart condition, the team is limited on the medications they can give Erin.  They did give her a heavy dose of IV fluids to combat her dehydration and to hopefully help increase her blood pressure.  She was doing well with that today.  A side effect is that she is a bit puffy, still stunningly beautiful, but a touch puffy.  She notices it most in her fingers and toes, which also give her trouble with tingling, loss of sensation, or coldness.  Luckily, she has loving family and friends by her side to take shifts as her personal masseuse.  If her night goes well tonight, she could possibly move out of ICU tomorrow.  It is unclear how long her hospital stay will be, but probably a few more days. 

When I walked in her room, I was encouraged to see her eyes open a bit and to hear her hello.  Her boys were there and visited for a bit with Mom.  It brought tears to my eyes to watch their Daddy lift them both to hug their Mom on their way out the door.  I am so glad they got to see her.

Erin amazes and humbles me constantly.  As we were talking, she told me I needed to get home to my family, always worrying about others over herself.  I told her they were with my husband and not even home yet.  She asked about my start to this school year (I'm a first grade teacher) and wanted to know all about my students.  She asked about some other stressful things in my life and showed that through it all, she will always be our special, sweet Erin who has a pure heart of gold.  As her dad was dozing in a chair, she was talking about ways to convince him to go home.  She pushed her mom to return home to rest, promising to call if she needed her.  I cannot believe her strength, her compassion for the journey the rest of us our on, and her positive outlook.  Erin, this is just one little reason why so many people love you so, so much.  To her family and friends, thank you.  Thank you for watching out for Erin.  Thank you for letting me invade her room.  Thank you for calling 911 and getting her help immediately.  Thank you for putting the needs of her children so high on your list.  Thank you for updating me and allowing me to publish the details on here.  I am so humbled and grateful.
-Kim

P.S. I forgot something pretty cool.  Last night, when the team was in to see her, she was educating them on her rare heart condition.  She couldn't even open her eyes, but she was telling them which websites to visit to learn more and where to find lists of meds she could not have.  I cannot believe her strength.  Amazing woman.....  Now she has to let me shave my head when she loses her hair.  Time to encourage her!!!

Erin and Her Awesome Little Guys

Erin experienced a nightmarish day today.  It has been a bit of a whirlwind, so I will share what I know the best I can.  Erin was at home and had been struggling with nausea and fatigue.  She had an extremely frightening seizure that prompted a 911 call and an ambulance to transport her to Sacred Heart hospital.  To the best of my understanding, the doctors believe her seizure was caused by dehydration and an infection, possibly at her port site.  During the trauma, Erin's blood pressure dropped significantly, her heart stopped, and the paddles were used to revive her.  The doctors are contemplating removing her port, but have put in a temporary, external port on the other side for now.  Currently, they are running cultures to determine the extent and nature of Erin's infection.  She is listed in critical condition, is responsive in the form of nods, but was not speaking in the last report I received.  Erin is at Sacred Heart Hospital for an undetermined amount of time, but definitely will be staying the night tonight.  Please keep her, her family, her sweet little boys, and her friends in your thoughts and prayers.  Love and support will be needed to make it through this trying time.

On a totally different note, with no possible way to segue smoothly, the young Hughes men tackled their first day of school today.  Gavin is in sixth grade, likes his teacher, and is glad his best friend is in his class.  He got himself spiffed up for school and walked out the door looking sharp.  When I called to speak with his dad, Gavin was already busily working on a school project.  Landon also had a big day celebrating his first day of kindergarten.  Just like his big bro, Landon likes his teacher and was thrilled to find some friends from preschool in his class.  After school, Landon went to his dad's work where he saw a man with a shaved head.  When the man left, Landon asked Nik, "Dad, is that the guy that wants to kill Superman?  He looks like him."  Who knew Lex Luther lives in Spokane???  LOVE, LOVE, LOVE those sweet boys.